Studying the needs of disabled children with congenital heart defects in medical and social rehabilitation measures using ICF tools

Мұқаба
  • Авторлар: Arapkhanova H.A.1, Vladimirova O.N.2,3, Kovalev I.A.4, Orlov A.V.5
  • Мекемелер:
    1. Federal Bureau of Medical and Social Expertise of the Ministry of Labor and Social Protection of the Russian Federation
    2. Federal State Budgetary Educational Institution of Higher Education Saint Petersburg State Pediatric Medical University of the Ministry of Health of the Russian Federation
    3. JSC "CITO" of Rostec State Corporation
    4. Federal State Budgetary Institution "A.N. Bakulev National Medical Research Center for Cardiovascular Surgery" of the Ministry of Health of the Russian Federation
    5. State Scientific Center of the Russian Federation Institute of Biomedical Problems of the Russian Academy of Sciences
  • Шығарылым: Том 18, № 1 (2025)
  • Беттер: 18-25
  • Бөлім: The questions of organization of medical-social expertise and complex rehabilitation
  • ##submission.dateSubmitted##: 14.09.2025
  • URL: https://jdigitaldiagnostics.com/1999-2351/article/view/690350
  • DOI: https://doi.org/10.63839/19992351-02
  • ID: 690350

Дәйексөз келтіру

Толық мәтін

Ашық рұқсат Ашық рұқсат
Рұқсат жабық Рұқсат берілді
Рұқсат жабық Тек жазылушылар үшін

Аннотация

The article is devoted to the current problem of studying the needs of disabled children with congenital heart defects in medical and social rehabilitation measures using the ICF tools. The aim of the study was to study the needs of disabled children in medical and social rehabilitation measures using the tools of the International Classification of Functioning, Disability, and Health (ICF). To achieve this goal, we studied the acts and protocols of examination of children in institutions of medical and social expertise of the ITU, analyzed individual programs of rehabilitation and habilitation of disabled children, developed a questionnaire to study the needs using the ICF tools. In the course of the study, the main needs of disabled children in medical and social rehabilitation measures were determined and concomitant disorders were identified, and, accordingly, additional needs of disabled children in rehabilitation measures were revealed. The study of the needs of disabled children with congenital heart disease in medical and social rehabilitation measures using the ICF tools made it possible to determine the main directions of rehabilitation work of specialists.

Толық мәтін

Рұқсат жабық

Авторлар туралы

Hava Arapkhanova

Federal Bureau of Medical and Social Expertise of the Ministry of Labor and Social Protection of the Russian Federation

Хат алмасуға жауапты Автор.
Email: Arapkhanovakhava@mail.ru

physician for medical and social expertise

Ресей, Moscow

Oksana Vladimirova

Federal State Budgetary Educational Institution of Higher Education Saint Petersburg State Pediatric Medical University of the Ministry of Health of the Russian Federation; JSC "CITO" of Rostec State Corporation

Email: vladox1204@yandex.ru
ORCID iD: 0000-0001-6692-2882

Doctor of Medical Sciences, Professor of the Department of Medical Rehabilitation and Sports Medicine at the St. Petersburg State Pediatric Medical University Ministry of Health of the Russian Federation; Head of the Center for Innovation, Technology and Education of JSC "CITO" of Rostec State Corporation

Ресей, Saint Petersburg; Moscow

Igor Kovalev

Federal State Budgetary Institution "A.N. Bakulev National Medical Research Center for Cardiovascular Surgery" of the Ministry of Health of the Russian Federation

Email: Arapkhanovakhava@mail.ru

Doctor of Medical Sciences, Professor

Ресей, Moscow

Artemy Orlov

State Scientific Center of the Russian Federation Institute of Biomedical Problems of the Russian Academy of Sciences

Email: Arapkhanovakhava@mail.ru
ORCID iD: 0000-0003-1290-0113

Researcher

Ресей, Moscow

Әдебиет тізімі

  1. Appakhova G.M., Almukhanova A.B., Makhanbetkulova D.N. "Organization of medical care for congenital heart defects" // Medicine, Science and Education. 2024. No. 2. URL: https://cyberleninka.ru/article/n/organizatsiya-meditsinskoy-pomoschi-pri-vrozhdennyh-porokah-serdtsa (date of request: 11/12/2024).
  2. Arapkhanova H.A., Puzin S.N., Potapov V.N. and others. "The global burden of congenital heart defects in public health" // Bulletin of the All-Russian Society of Specialists in Medical and Social Expertise, Rehabilitation and Rehabilitation Industry. 2024. No. 3-4. pp. 30-44.
  3. Arapkhanova Kh.A., Potapov V.N., Vladimirova O.N. "The main directions of medical rehabilitation of disabled children with congenital heart defects" // Bulletin of the All-Russian Society of Specialists in medical and Social expertise, rehabilitation and rehabilitation industry. 2024. No. 3-4. pp. 45-54.
  4. Arapkhanova Kh.A., Puzin S.N., Vladimirova O.N., Potapov V.N., Kovalev I.A. "Primary disability of children due to congenital heart defects: an analysis of the condition" // Volgograd Scientific Medical Journal. 2024. Vol. 21, No. 4. pp. 19-25.
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  7. Isaev I.S., Alieva N.R. "Features of the structure of morbidity and mortality in children of the first year of life" // SAI. 2024. No.Special Issue 44. URL: https://cyberleninka.ru/article/n/osobennosti-struktury-zabolevaemosti-i-smertnosti-detey-pervogo-goda-zhizni (date of request: 12.11.2024)
  8. Ishutina I.S., Vladimirova O.N., Khodakovsky M.D., Gerashchenko L.I. "Assessment of the need of families with disabled children for additional social protection measures" // Healthcare specialist. 2020. No. 21. pp. 10-12.
  9. Nelunova T.I. "Clinical and epidemiological aspects of congenital heart defects in newborns in the Republic of Sakha (Yakutia)" // St. Petersburg, 2023. 19 p.
  10. Povorinsky A.A., Vladimirova O.N., Shoshmin A.V., Kulinich T.S. "Indicators of the functioning of people with disabilities with impaired neuromuscular, skeletal and movement-related functions based on the International Classification of Functioning, disability and health of the ICF, taking into account environmental barriers" // Medical and social expertise and rehabilitation. 2023. Vol. 26, No. 2. pp. 101-110.
  11. Pronina E.V., Vladimirova O.N. "Medical and social expertise of the child population in the Russian Federation: background, current state, directions of reform" // Pediatrics. The G.N. Speransky Journal. 2015. Vol. 94, No. 4. pp. 193-199.
  12. Khorkova O.V., Puzin S.N., Bogova O.T., Puzin S.S. "Analysis of statistical data on primary disability – the basis for planning measures for its prevention" // Medical Alphabet. 2021;(23):100-103. https://doi.org/10.33667/2078-5631-2021-23-100-10

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